HAPPY LITTLE PEOPLE

If you're going to end up with a child modified by a Syndrome, Cornelia De Lange is a good one to deal with.

My girl always smiles.  If she isn't, she is some sort of pain.

I've met many Cornelia De Lange kids, and most of them are happy.  In a way, I'm glad that my girl doesn't talk, because about the only Cornelia De Lange kid I met that could talk very well chose to sing .......... nursery rhymes......... all    the    time!   And another thing I noticed when meeting others with Cornelia De Lange, although the boys often ended up with limb deformities, they could often speak some words.  The girls more often than not were 'whole' (if not quite the usual shape the rest of are) but I have never met one who can talk. 

The largest number I have met at any given time was an international convention in 2004, Sydney, Australia.  There were hundreds from all over the world.  It was truly comforting to speak to others in the very same predicament as we were.  It's a silent parallel world that we parents of 'disabled' kids have to live in and there are very few people who really understand the idiosyncrasies of a syndrome - and that goes for professionals as well.  I used to have to carry a folder around to any appointments with any information I could find so they had some guide as to what they were dealing with.  Thank God those days are over.  My girl is healthy, happy and well these days.